We have been SO blessed by the outpouring of love and support since Grace was diagnosed with INAD last November. As soon as Kyle's column ran in the paper, people immediately started asking what they could do to help. And our standard answer was that we were fine (well, as fine as you could be).
|These are the new Fight the Fight shirts.
Although, it turns out I didn't have to do much. You, our awesome community, have pulled together and done it for us. There isn't a single week that goes by that I don't get a phone call or hear about another fundraiser for the INAD study. Last week's Volley for Grace fundraiser was no exception.
|Pete presented us with a check for $1,000 from Fight the Fight.
Megan told us she had contacted founder Pete Visintin about the possibility of adding Grace to their list of recipients. She had hoped they could do some personalized shirts when Morrisonville hosted Lincolnwood in baseball later that spring. However, Fight the Fight is growing in popularity, and the soonest Grace could get on the list was this fall.
|Eighth graders at Morrisonville won the penny wars competition, which raised $500!
Kyle corresponded some with Pete about sharing our story on their website, and toward the end of the summer, he sent us the shirt designs. The front said "Volley for Grace" with a volleyball and her initials on the front. And the back said "You're Our Amazing Grace." The shirts came in both red and orange, so we figured we would order one of each color and support both teams who support us so very much.
|Grace's biggest fans, Kayley and Kensey.
After the junior varsity game was over, they invited us down to the floor and we had a chance to meet Pete Visintin in person. He talked a little bit about his inspiration to start Fight the Fight, which came when his dad was battling brain cancer. Then, he presented us with a $1,000 check for the INAD study, and said he would have a little more as the shirts could be ordered through that weekend.
|Grace's cheering section included her cousin, Quincy, Aunt Mikaela and cousin Dana.
You know, we have bad days sometimes, because the bottom line is that this disease sucks, and takes so much away from our beautiful daughter, our Amazing Grace. I would give anything in the world to hear her say, "I love you, mommy." Absolutely anything.
|Just the girls hanging out at the game.
After the check presentation, Morrisonville had another check presentation for us, raising $500 in a penny wars won by the eighth grade class. They also hosted a volleyball serving fundraiser that night and a 50/50 drawing, which brought in over $200. Add to that a donation from the teachers for a jeans day, and we came home with almost $2,000 for the INAD study. Washington University KNOWS that Montgomery County cares about Grace and about INAD.
After Grace had a chance to meet some of the students and players, Megan gave her a gift, including her favorite candy, M&Ms, and her very own Washington University T-shirt. We can't wait for her to wear it the next time we see Dr. Kotzbauer.
We settled in to watch the varsity game, and Grace got some special snuggles with Aunt Mikaela while Kyle took photos of the game. After the game, we posed for a few photos and chatted with people in the stands and coaches from both teams before heading for home after an awesome night.
And remember, always Fight the Fight!