A Grace Filled Journey

In November, 2014 we discovered that our three-year-old daughter, Grace, has a rare genetic disorder called INAD (infantile neuroaxonal dystrophy). This blog is dedicated to our little girl and the journey that we are on.

Grace-Filled Events

▼
Friday, April 19, 2019

Dancing Queen Of The Softball Field

›
Sometimes you have to make sacrifices to get what you want in life. Mary has always told me at work that you do the things you don't wa...
Monday, April 8, 2019

A One-Month Update

›
It seems hard to believe that we have already passed the one-month check ins as part of the clinical trial last month. Some days, it seems ...
Sunday, March 17, 2019

Thank You For Being A Friend

›
Thank you for being a friend. Every time I have stopped to think about our church’s pancake fundraiser, I can’t help but think of the theme ...
‹
›
Home
View web version

About Me

agracefilledjourney
View my complete profile
Powered by Blogger.