A Grace Filled Journey

In November, 2014 we discovered that our three-year-old daughter, Grace, has a rare genetic disorder called INAD (infantile neuroaxonal dystrophy). This blog is dedicated to our little girl and the journey that we are on.

Grace-Filled Events

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Thursday, December 21, 2017

Looking Back On A Year Of "Firsts"

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As we prepare to celebrate Charlotte's very first Christmas with our family, I've been reminiscing about this past year and many of ...
Monday, November 27, 2017

Surviving Our First Night In The Hospital

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As I tossed and turned, trying to sleep in a recliner next to Grace's hospital bed, I couldn't help but think to myself how lucky we...
Friday, November 10, 2017

Making Halloween Memories

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We've officially taken down our one Halloween decoration (of course, it's a pirate sign) and thrown our pumpkins away for the seaso...
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