A Grace Filled Journey

In November, 2014 we discovered that our three-year-old daughter, Grace, has a rare genetic disorder called INAD (infantile neuroaxonal dystrophy). This blog is dedicated to our little girl and the journey that we are on.

Grace-Filled Events

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Monday, November 27, 2017

Surviving Our First Night In The Hospital

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As I tossed and turned, trying to sleep in a recliner next to Grace's hospital bed, I couldn't help but think to myself how lucky we...
Friday, November 10, 2017

Making Halloween Memories

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We've officially taken down our one Halloween decoration (of course, it's a pirate sign) and thrown our pumpkins away for the seaso...
Monday, November 6, 2017

Always A Tiger

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This month, we had the chance to take both our girls to their first college football game at my alma mater, the University of Missouri, and ...
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