A Grace Filled Journey

In November, 2014 we discovered that our three-year-old daughter, Grace, has a rare genetic disorder called INAD (infantile neuroaxonal dystrophy). This blog is dedicated to our little girl and the journey that we are on.

Grace-Filled Events

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Tuesday, July 25, 2017

Celebrating With Family

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It started with a party and ended with a wedding. And everything in between - well we celebrated a lot with family.  It seems like ho...
Friday, June 30, 2017

A Little Bit Of Muny Magic

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They don't call it Muny magic for nothing! And we've been so blessed to see two shows there already this summer. Grace was exc...

Remembering To Celebrate The Little Milestones

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This milestone started with a wiggle.  And it wiggled and wiggled and wiggled, before Grace lost her very first tooth on June 1.   When I...
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