A Grace Filled Journey

In November, 2014 we discovered that our three-year-old daughter, Grace, has a rare genetic disorder called INAD (infantile neuroaxonal dystrophy). This blog is dedicated to our little girl and the journey that we are on.

Grace-Filled Events

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Monday, September 14, 2015

Fight the Fight

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So what do you do when your child is diagnosed with an incurable, untreatable genetic disease that could take her life before her tenth birt...
Thursday, September 10, 2015

Back To School

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After a summer full of fundraisers, trips, swimming and lots of fun, it was time for Grace to go back to school this week for her second ye...
Tuesday, September 8, 2015

The Birthday Princess

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Happy birthday to the most beautiful princess in the world! Princess Grace celebrating her birthday at church. Though it's hard t...
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